Quality of assistance provided to children with sickle cell disease by primary healthcare services

Quality of assistance provided to children with sickle cell disease by primary healthcare services

OBJECTIVE To evaluate the quality of healthcare provided to sickle cell disease children by primary healthcare services in a region of high prevalence. METHODS A cross-sectional, descriptive study was performed by interviewing members of families with sickle cell disease children. The children had been identified from the Neonatal Screening Program in Minas Gerais state over the last 12 years...

The Effectiveness of self management program on quality of life in patients with sickle cell disease

Background Sickle cell patients suffer from many physical, psychological, and social problems that can affect their quality of life. To deal with this chronic condition and manage their disease and prevent complications associated with the disease, they must learn skills and behaviours. The aim of this study was to determine the effectiveness of self-management programs on quality of life in t...

Medicaid personal care services for children with intellectual disabilities: what assistance is provided? When is assistance provided?

We report on the nature and timing of services provided to children with an intellectual disability (ID) identified by a new comprehensive assessment and care planning tool used to evaluate children's needs for Medicaid Personal Care Services (PCS) in Texas. The new assessment procedure resulted from a legal settlement with the advocacy community. Participants in the study were 1,109 children a...

Patient Satisfaction With the Quality of Health Services Provided by Public Hospitals in Rasht, Iran

Perception of primary care doctors and nurses about care provided to sickle cell disease patients

OBJECTIVE To analyze the perception of primary care physicians and nurses about access to services and routine health care provided to sickle cell disease patients. METHODS This descriptive exploratory study took a qualitative approach by surveying thirteen primary care health professionals who participated in a focus group to discuss access to services and assistance provided to sickle cell ...